Sunday, June 15, 2008

The Great Energy Continues!

Asher's still feeling great. I wish I knew its cause so that we know what to continue doing! He's been feeling great for the past two weeks, which is far longer than any good wave he's ridden in at least a year and a half. I'm on cloud 9!

Both boys had an absolutely wonderful experience at gymnastics camp. Asher did things I never thought possible - for him. On Tuesday, my jaw hit the floor when I saw him playing tug-of-war. He (age 4) and two 5 year-olds tugged against three 6 year-olds. After several minutes, one of the 5 year-olds on Asher's side let go of the rope and sat down. To my surprise, Asher and the other boy managed to keep the tug going for MINUTES after that. I couldn't believe it.

On Thursday, Asher walked on the balance beam by himself - which is only the second time that's happened to my knowledge - and even got up on one of the higher beams and walked sideways on it by himself. I couldn't believe that one! On Friday, Asher was thrilled to show me how well he could dribble a beach ball and he LOVED playing volleyball(!). He jumped up and down in sheer excitement and hustled to get the ball so he could hit it. I couldn't believe the energy level in my kid! I began to wonder if my child was replaced by a totally different kid who just LOOKED like Asher!

In comparison, prior to these past two weeks, if Asher exerted himself for an hour, he would be wiped out for the next week. So in addition to all these new skills he learned, I'm completely surprised (and thrilled!) at his energy level.

Back in early January (January 7th, I believe), Asher was trying to walk down the stairs by himself in our house. He couldn't do it. He was so weak and clumsy and uncoordinated that he nearly fell and stumbled down the stairs. When first realizing that her child would tumble down the stairs, a good mom would have run up the stairs to catch him. I didn't do that. Instead, I grabbed the nearby video camera and filmed it so that I can take the video clip to the doctor and get an understanding of why he was suddenly having trouble going down the stairs. The doctor was also concerned and said it looked like a muscular dystrophy sort of thing. Yeah, I know, like that's comforting.

I'm thrilled to report that this past week, Asher trotted up and down the stairs - by himself - like it was nothing! Woo hoo!

Another huge improvement is that his hands haven't been shaking. Until recently, Asher has suffered from "Parkinson-like shakes" in his hands. Really. It was hard for him to hold a cup of his elemental formula because his hands would shake so much that he'd drop it. I'm proud to report that this past week, his hands haven't shaken like that at all! That's HUGE!

Again, I wish I knew what is making Asher feel so great. We'll just enjoy riding this great energy wave for as long as it continues...and hope for a nice long ride.

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