Asher Update

We haven't had an Asher update in a while...here it is:

The news is - no news! We still have not started the elemental formula. Insurance denied our request and we can't afford the $35/day ($1000/month) that the formula costs. Right now we're looking into options to see what we can manage.

A couple of weeks ago, we removed corn syrup from Asher's diet. We know that Asher reacts to corn, but corn syrup is supposed to be safe, due to something about the food processing stripping 99.5% of the proteins away. Corn syrup, by the way, is in EVERYTHING. But after reading in three different places that food reactions do occur to corn syrup, we removed it from Asher's diet.

Interestingly enough, Asher is eating A LOT better now. He no longer struggles with eating and eats so much that I think one of his legs is hollow. It's a pleasure to watch him eat now. Is that IT? Have we gotten the last remaining allergen from Asher's diet? I'm tempted to have him scoped now, just to see if he scopes clear now. If these scopes weren't so invasive - and far away - I'd be tempted.

We're pretty sure that Simi does NOT have ee. Simi struggles with eating too, although clearly not to the extent that Asher does. Rather than submit Simi to an endoscopy, we sent his two sets of endoscopy slides (from when he was a baby and struggling with reflux) to Cincinnati to be read by their pathologist. No eosinophils in either of the two sets. Phew!

So, in a nutshell, Asher's fine right now although we haven't made any progress at all on his ee. I'll post another update when there is news to tell.