A mere day after Asher's birthday, he starts wheezing. Asthma is always worse at night. And it's the worst between the hours of 1 and 3 AM, when you're least likely to head to the emergency room.
So last night, poor Asher is coughing like crazy and there we are with the nebulizer machine, giving the poor kid breathing treatments. And he's complaining of a sore throat, so we're giving him cough medicine (allergen-free cough medicine, of course). Meanwhile, nothing's helping and he's absolutely completely miserable. Needless to say, none of us got any sleep last night.
Now we have a prescription for a year for Pulmicort Respules (I just love that name) in addition to the albuterol treatments, just in case this happens again. Phew!
Good thing we haven't begun a new food trial in awhile.
Thursday, September 27, 2007
Wednesday, September 26, 2007
Our Four Year-Old
Asher is now four. He's thrilled. I think he had a great birthday celebration. On his birthday, he wore his birthday shirt to school and we sang the Beatles' song, "Today is Your Birthday" all the way to school. Then, Raj and I both went to his school at lunch time and sang happy birthday to him and handed out Asher-safe lollipops to him and all his friends. Then, at dinner,
we celebrated some more and he got his birthday present: a frog habitat. And now he has a frog.
Did you know that frogs eat crickets and other live insects? Ick.
we celebrated some more and he got his birthday present: a frog habitat. And now he has a frog.
Did you know that frogs eat crickets and other live insects? Ick.
Sunday, September 23, 2007
Asher's Fourth Birthday
Asher is nearly four. And now we have begun to celebrate.
Our first event was at his paternal grandparent's house. We had a small birthday party, sang happy birthday, and put together the cool puzzle he got as a gift.
Next up was the party at Pump It Up. Asher has been planning this party for about six months now. As you can imagine, this is the party he was the most excited for. He and his friends had a blast playing and running around in these inflatables and sliding down the big slides.
Before his Pump It Up party, we made him a birthday shirt. Both boys loved the idea so much that I think we're going to make this a yearly ritual. We took a plain shirt (actually, it was an old shirt from one of their soccer teams, turned inside out) and decorated it. On one side, it said, "Birthday Boy", "I'm four years old", with all sorts of decorations. On the other side, it said something similar. Both Asher and Simi had a great time while we were making the shirt and Asher loved wearing it.
Leila had to miss Asher's birthday party. Because of the ITP, it was too dangerous for her to be there. With low platelets, her blood won't clot as well as it should. So, if she were to get hit or fall down, particularly on her head, it could have catastrophic results. Thankfully, a great friend offered to baby-sit for her; which we gratefully appreciate. Thank you Charles and Shannon!
We still need to celebrate Asher's birthday at school, then, of course, we need to have a party at home on his actual birthday. Golly, he's going to be worn out by the time his actual birthday comes along!
Our first event was at his paternal grandparent's house. We had a small birthday party, sang happy birthday, and put together the cool puzzle he got as a gift.
Next up was the party at Pump It Up. Asher has been planning this party for about six months now. As you can imagine, this is the party he was the most excited for. He and his friends had a blast playing and running around in these inflatables and sliding down the big slides.
Before his Pump It Up party, we made him a birthday shirt. Both boys loved the idea so much that I think we're going to make this a yearly ritual. We took a plain shirt (actually, it was an old shirt from one of their soccer teams, turned inside out) and decorated it. On one side, it said, "Birthday Boy", "I'm four years old", with all sorts of decorations. On the other side, it said something similar. Both Asher and Simi had a great time while we were making the shirt and Asher loved wearing it.
Leila had to miss Asher's birthday party. Because of the ITP, it was too dangerous for her to be there. With low platelets, her blood won't clot as well as it should. So, if she were to get hit or fall down, particularly on her head, it could have catastrophic results. Thankfully, a great friend offered to baby-sit for her; which we gratefully appreciate. Thank you Charles and Shannon!
We still need to celebrate Asher's birthday at school, then, of course, we need to have a party at home on his actual birthday. Golly, he's going to be worn out by the time his actual birthday comes along!
Leila's First Purse
Every day, walking to and from her room at daycare, Leila insists on carrying her lunch bag. Never mind that the thing is bigger or weighs as much as than she. Mostly, she drags it on the floor behind her as she toddles down the hall.
So today I bought her a purse. It's pink with pictures of pixies (think Tinkerbell) on it. Leila absolutely loves it.
The first item to go into her purse (courtesy of her brothers) were two matchbox cars. Leila carries it on her shoulder, exactly like you should carry a shoulder bag, and she struts her stuff across the room. She's thrilled!
That's my girl!
So today I bought her a purse. It's pink with pictures of pixies (think Tinkerbell) on it. Leila absolutely loves it.
The first item to go into her purse (courtesy of her brothers) were two matchbox cars. Leila carries it on her shoulder, exactly like you should carry a shoulder bag, and she struts her stuff across the room. She's thrilled!
That's my girl!
Thursday, September 20, 2007
Tough Week
This has been a tough week in the HinJew household. First issue, of course, is Leila being so sick. The ITP thing is bad enough, but now she's pretty much stopped eating solid foods. It's way too reminiscent of Asher's eating habits pre-ee diagnosis and it has me absolutely terrified. And I can't help but think they're related. I mean, ITP is the body's immune system attacking the platelets. EE is the body's immune system attacking food particles in the body. The body's immune system thinks this food is the enemy, just like it thinks the platelets are the enemy.
Leila's not the only one who has had a tough week. Simi has had a very difficult week in track-out camp. It's really hard seeing your child in difficult situations and it broke my heart watching what he's been going through the first part of this week. He's a trooper, though, and has come through it phenomenally well. He's quite the resilient kid. I'm proud of him. Next week he goes to a different track-out camp. We'll see how things go there.
Asher's feeling ignored with all the commotion around him. Thankfully, he's not suffering any sort of thing! Phew!
Although we're ready for another food trial, we've held off to make sure he's healthy for his birthday celebration. It would really stink to have to miss one's own birthday party due to illness. Plus, we're in the midst of allergy season here and don't want any sort of problem due to environmental allergies messing up the food trials. Best to be patient and wait for the ragweed and grass allergies to wane a bit before introducing another food.
Thankfully, this week is nearly over. Let's hope next week is a better one.
Leila's not the only one who has had a tough week. Simi has had a very difficult week in track-out camp. It's really hard seeing your child in difficult situations and it broke my heart watching what he's been going through the first part of this week. He's a trooper, though, and has come through it phenomenally well. He's quite the resilient kid. I'm proud of him. Next week he goes to a different track-out camp. We'll see how things go there.
Asher's feeling ignored with all the commotion around him. Thankfully, he's not suffering any sort of thing! Phew!
Although we're ready for another food trial, we've held off to make sure he's healthy for his birthday celebration. It would really stink to have to miss one's own birthday party due to illness. Plus, we're in the midst of allergy season here and don't want any sort of problem due to environmental allergies messing up the food trials. Best to be patient and wait for the ragweed and grass allergies to wane a bit before introducing another food.
Thankfully, this week is nearly over. Let's hope next week is a better one.
Tuesday, September 18, 2007
ITP
Leila has ITP. She got it as a result of the MMR vaccine.
The doctor explained that a person normally has about 100,000 platelets in their body. Anything under 40,000 is bad. When we brought Leila into the doctor yesterday, she had 4,000 platelets.
This morning, after treatment, the platelets were up to 18,000.
The doctor explained that a person normally has about 100,000 platelets in their body. Anything under 40,000 is bad. When we brought Leila into the doctor yesterday, she had 4,000 platelets.
This morning, after treatment, the platelets were up to 18,000.
Saturday, September 15, 2007
Simi Update
Simi just completed his first quarter of school. Now he has three weeks of vacation. How cool is that?
Simi is absolutely loving school. He's doing incredibly well. He has math twice a day, which he loves. He also does a lot of reading, writing, and listening comprehension. Every day they have a different special: either gym, art, music, computer, or one other thing which I forget right now. He loves it all.
His reading is amazing. He's reading very fluidly right now. He's on level 16 of books, if that means anything to anyone. He is also working on his writing and doing first grade math. I'm so incredibly grateful that he's in the K/1 combination class and can do the math with the first graders. He is just absolutely loving it.
Simi also just started violin lessons. We just got Simi a little Suzuki violin - it's teeny tiny! Both boys continue to take swim lessons on Saturday mornings.
So now Simi is on vacation for three weeks. We enrolled him in one camp this week and a different one next week - just to see which (or both) he likes the best. There are lots of camp options, so we'll try a bunch and see which he likes the best. I've checked out these camps and they look like a lot of fun. In fact, I'd like to participate!
And that's our latest Simi update.
Simi is absolutely loving school. He's doing incredibly well. He has math twice a day, which he loves. He also does a lot of reading, writing, and listening comprehension. Every day they have a different special: either gym, art, music, computer, or one other thing which I forget right now. He loves it all.
His reading is amazing. He's reading very fluidly right now. He's on level 16 of books, if that means anything to anyone. He is also working on his writing and doing first grade math. I'm so incredibly grateful that he's in the K/1 combination class and can do the math with the first graders. He is just absolutely loving it.
Simi also just started violin lessons. We just got Simi a little Suzuki violin - it's teeny tiny! Both boys continue to take swim lessons on Saturday mornings.
So now Simi is on vacation for three weeks. We enrolled him in one camp this week and a different one next week - just to see which (or both) he likes the best. There are lots of camp options, so we'll try a bunch and see which he likes the best. I've checked out these camps and they look like a lot of fun. In fact, I'd like to participate!
And that's our latest Simi update.
Monday, September 03, 2007
Baking Powder and Cocoa Powder
Here is an update on Asher's food trials: we've declared baking powder (featherweight) a success and have moved on to the next trial: cocoa powder. Cocoa powder enables Asher to have chocolate cookies and cupcakes. It is also rich in antioxidents which is difficult for him to get elsewhere.
When we first approached Asher with the idea of trialing cocoa powder, Asher absolutely immediately said, "NO!" His eyes got big and he said it in a very serious, absolute way. His reaction took both Raj and me by surprise, until we asked him why he felt that way. He's allergic to chocolate, he said, and it will make him sick. It took a good bit for us to talk him through the idea of trialing cocoa powder to see if he is, indeed, allergic to it. We also explained the difference between cocoa powder and chocolate bars, to which he is definitely allergic (it has milk and soy in it).
So, during nap time, Raj went to work making chocolate cupcakes and chocolate cookies. They're absolutely delicious! Apparently, Asher thinks so too because he ate nearly all the cookies AND several of the cupcakes. Cocoa powder is rocking Asher's world.
Let's cross our fingers and toes on this one. On the allergenic scale, cocoa powder is a wild card. We just have no clue at how Asher's body will respond to it.
Raj has been doing an absolutely amazing job in baking! He is figuring out the mixture of rice flour, millet flour, baking powder, and banana (and now cocoa powder) to make some amazing creations. I know that I couldn't do what he's doing. We're very fortunate!
When we first approached Asher with the idea of trialing cocoa powder, Asher absolutely immediately said, "NO!" His eyes got big and he said it in a very serious, absolute way. His reaction took both Raj and me by surprise, until we asked him why he felt that way. He's allergic to chocolate, he said, and it will make him sick. It took a good bit for us to talk him through the idea of trialing cocoa powder to see if he is, indeed, allergic to it. We also explained the difference between cocoa powder and chocolate bars, to which he is definitely allergic (it has milk and soy in it).
So, during nap time, Raj went to work making chocolate cupcakes and chocolate cookies. They're absolutely delicious! Apparently, Asher thinks so too because he ate nearly all the cookies AND several of the cupcakes. Cocoa powder is rocking Asher's world.
Let's cross our fingers and toes on this one. On the allergenic scale, cocoa powder is a wild card. We just have no clue at how Asher's body will respond to it.
Raj has been doing an absolutely amazing job in baking! He is figuring out the mixture of rice flour, millet flour, baking powder, and banana (and now cocoa powder) to make some amazing creations. I know that I couldn't do what he's doing. We're very fortunate!
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