Sunday, October 12, 2008

Mr. Toad's Wild Ride

This week has been a wild ride for us in the HinJew household. Aside from the bottom dropping out of the economy and the gobs of "ripples" felt from that, aside from the fear of "what in the world is going to happen next", we're "enjoying" our own spinning teacups and bottomless free-fall that comes with Asher's disease.

On Monday, Asher's kindergarten class drew letters using corn grits. About two hours after the fact, Asher's teacher thought, hmmnnn...perhaps that's not such a good thing for Asher to be doing and called me. I wished she had called earlier.

Corn is like touching Drano for Asher. It really is like a chemical burn on his skin and it makes him horrifically sick. In the past, touching corn has caused Asher about two solid weeks of sickness and vomiting and a loss of several pounds of body weight. So I'm thrilled to report that he suffered no/little ill effects from the corn. This is HUGE! It's really amazing and is proof that we're on the right track. I really and truly can't believe that he didn't get sick, particularly after taking that huge allergen hit by rolling down the hill at the company picnic. Amazing.

That was Monday.

Tuesday was gymnastics. The kid was a disaster. They worked on the balance beam, which is Asher's worst area. He was particularly congested on Tuesday. He couldn't do a doggone thing on the balance beam. He even struggled with things that he's been able to do in the past. I am beginning to see a correlation between Asher's congestion and his balance/coordination.

Asher's gymnastics teacher got really frustrated with Asher. She's clearly never had a student like Asher before. She let her frustration get the best of her and, well, almost crossed the line of being hurtful to Asher. I'll give her the benefit of the doubt. Frankly, I've been in that state before and I can understand being that frustrated. But then again, I'm not a teacher.

On Tuesday, Asher brought home his progress report. In short, he's failing kindergarten. He got nearly all check minuses. We've said that we wanted him to repeat kindergarten but we didn't want him to FLUNK OUT of kindergarten! That's a different story.

Back to gymnastics: After his class, Asher came upstairs to where I was sitting and saw the jigsaw puzzle left behind by Simi (who just started his class) and excitedly started to do the puzzle. This particular puzzle is for age 2 - it's very simple. Asher quickly put three pieces together and excitedly looked to me for praise and I just died inside. None of the pieces even remotely matched and he really had to force the pieces together to "fit". They were a VERY obvious mismatch. After seeing his horrendous report card, watching this particularly atrocious gym class and now seeing this pathetic puzzle effort - I had to really struggle to keep my composure. It took everything I had not to bawl my eyes out in front of him.

Tuesday was not a good day for Asher.

So now he does jigsaw puzzles every day after school. I quiz him on simple math in the car on the way to school. And I'm feeling a small bit more optimistic about his intellectual capability.

We've been working incredibly hard to clear his congestion. Clearing his congestions helps him - a lot - or so it seems.

On Wednesday, I had a talk with the exception children's coordinator at Asher's school. I've been bugging him since this summer about Asher. Hopefully he'll start giving us some help. Asher needs it.

Now, toward the end of the week, Asher's energy level is rising to amazingly high levels. Raj even used the word "hyper-active" to describe Asher today. It's hard to believe, but Raj is right. I never thought we'd ever use that word to describe Asher. It truly was just a few months ago when I, literally, had to drag Asher out of bed in the morning. And now here he is unable to sit still for a minute. Unbelievable.

As you can see, Mr. Toad's Wild Ride is taking us for quite the spin.

1 comment:

Julie said...

How are you guys? How's Asher doing? Is it still one big roller coaster??