Gosh, news stories on Eosinophilic Esophagitis are popping out all over the place now! The latest one is in this week's issue of People Magazine. It's a beautiful story of a seven year-old boy named Adam with Eosinophilic Esophagitis. He gets treatment at Children's Hospital of Philadelphia, one of the two national hospitals who specialize in Eosinophilic Diseases. (Asher gets treatment at the other one, Cincinnati Children's Hospital.) Like Asher, Adam is on elemental formula. Unlike Asher, Adam is tube fed, which means that instead of drinking the formula, it goes into a tube straight into his stomach. Adam can eat six foods; Asher currently has four. Interestingly, the foods Adam can eat are poison to Asher.
It's a beautiful article and well written. I was hoping to link to it on-line, but People Magazine doesn't seem to offer an online version.
Asher was thrilled to see a boy JUST LIKE HIM in the magazine. Adam even had a bed JUST LIKE HIM.
If you get a chance, go ahead and read the article. It truly is a beautiful piece.
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