Friday, April 29, 2005

Asher Endoscopy and pH Probe







Asher with pH ProbeAsher in Jail

Asher had his Endoscopy and a pH Probe yesterday. We'll get results on Wednesday.

(we'll edit this post with more info later...)

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It's Liz writing. I've been struggling for days with what to say about Asher's endoscopy and pH Probe. My first thought is to make it short and succinct. That thought is quickly followed by the thought to give more information for folks who may be surfing into this blog who are going to have to go through this stuff with their own child.

In some ways it was like running a marathon. Some parts were tough, but if you can stick with it, you'll make it to the finish line. Good golly, I can't tell you how many times I wanted to quit during that 24 hours. Seeing Asher suffer so much at some points really got to me. But we did prevail and made it to the 24 hour mark and now we have the data we need to know what's going on in that adorable little body of his.

So, without further ado, here goes:

The endoscopy experience was a little weird, but over with quickly. The anthesiologist was a bit lackadaisical about Asher's weight (do they not need to get his weight right for the anesthesia?), the doctor was a bit lackadaisical about getting into the room and preparing for the endoscopy, and it must have taken the Dr. a total of 5 minutes to do the actual procedure. I guess that although it's a big deal for us; it's routine for them. What's important is that we got the look and the biopsies and that Asher did fine. We'll get the results of the endoscopy on Wednesday and plan a course of action from there.

Next, the pH probe: nurse Fay inserted the probe while Asher was under anesthesia. They also taped Asher's arms to boards -- from his armpits to his fingers -- so that he wouldn't be able to pull out the pH probe.

Poor Asher, he came out from anesthesia and couldn't move his arms and was hungry and mad. Anyone seen the movie, "The Incredibles"? If so, think of Jack-Jack at the very end of the movie. Asher was so mad, I thought he'd burst into flame.

The nurse wouldn't let him eat or drink anything until they properly placed the pH probe using x-ray. I'm a big planner, so the rest of the pH probe placement drove me absolutely nuts. The nurse waited until Asher was ready to be discharged from recovery to call x-ray and have the probe placed properly. When Asher was ready for discharge, she was hard to find. Meanwhile, Asher was crying because he was hungry. Faye returned and called x-ray. Then we had to wait for x-ray to get ready. Meanwhile, Asher is screaming mad and really hungry and I wasn't allowed to feed him.

Finally, we get into x-ray. We put our precious baby in a foam basin (it keeps him in place during the x-ray) and we're told to stand behind the glass because it will only take "2 seconds" to place the probe. Minutes later, we're still waiting. Asher is crying hysterically and I'm ready to scoop him up and take him out of there. The test just about stopped before the probe was even in place! I think that was the worst part of the entire 24 hours.

After the probe was placed, we were allowed to offer Asher a bottle. He took one sip, felt the probe down his throat and started to cry. He took another sip and did the same thing. Then he cried and cried because he was hungry and there was some horrible thing going down the back of his throat. Asher cried and cried for hours. He cried so hard he became hoarse. Again, I doubted we could make it the entire 24 hours.

At about 6 PM, Asher drank his bottle. By this time he was so hungry that he drank the entire 8 oz in less than 4 minutes! Then he promptly vomited it right back up again. I was glad the nurse suggested I bring a change of clothes! I cleaned us up and changed us both and gave Asher a few extra ounces of bottle. He stopped crying and was a bit less cranky.

Asher vomited 3 or 4 more times during the night. We both ran out of clothes to wear and started to wear hospital gowns. I got about an hour sleep; Asher got about 5 hours of sleep. We did manage to get through the night. By the time 8 AM rolled around (Nurse Faye mentioned that she and Dr. Ulshen would return to remove the pH probe between 8 and 9 AM), we were doing the victory dance. We made it!!!

Poor Asher was completely traumatized by strangers. Anytime anyone came into our room he cried, turned away from them, and clung to me like crazy. I hope he forgets this experience quickly.

Next step....patiently await the results....

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